Uthiran, a 17-year-old from Thiruvananthapuram, battled the severe effects of Crouzon syndrome, a rare genetic disorder that ...

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Crouzon Syndrome Treatment Success | Narayana Health Bangalore

e [Music] [Applause] [Music] [Music] op [Music] came to me sometime back he was a 16-year-old boy when I first saw him I was really very sad because he had already lost his uh Vision in one eye considerably and he had lost all hope with the both both eyes bulging out he had been sort of treated very badly at school and he could not go into to public but I felt he was a very intelligent boy and somebody who would really requir a new lease of life and this is a condition called cruson syndrome and the reason he was losing with lot of intracranial pressure so he was actually having a severe headaches and he was not able to cope uh with normal studies and he was all the time in distress so what we decided was that we will operate on him it's a fairly rather a complex procedure on we had an interal procedure with our Neurosurgical colleagues to expand the space of the cranium and also to reshape the skull so that he has uh uh more space for the brain to occupy and the intracranial pressure would be reduced uh in 's case I must say that uh the planning was quite challenging because normally you do not plan to move the jaw so forward and in different dimensions so it is usually at a younger age group when you're planning uh movement of the midphase you it is more or less a linear Vector you just move it forward and then subsequently you do the orthodontic correction and get your teeth to bite in the right way but here we were trying to achieve all of it in one shot so it was very challenging and we did a lot of um simulation and 3D modeling before we came came up with the final plan it it's challenging because we even went down to the basics of you know 30-year-old technology where you physically draw it you try to simulate your movement and then you kind of estimate how much movement you need what angulation you need then you simulate it again on your 3D just see how it works then do it with soft tissue uh simulation see how it works so it was not a very easy planning and um we also had to have backup plans so if in case if even on table if something does not work out as planned what do we do next so the planning took several weeks more than I think six weeks we took [Music] [Music] it is one of the most satisf Ying operations because it completely transformed the next time he came he came with such a big smile because against all hope he had actually come to us because he had gone here and there and they had suggested so many things but he was not satisfied that they will be able to do the correct the problem and he himself did not believe that he has a problem that could be solved quite honestly I'm very very happy with the outcome because normally when you treat patients with cruzon syndrome you can still tell that you know he's a guy who's been who's had this condition before uh but in U's case the the change is very dramatic uh he himself comes and tells me that it's like it's more or less like an identity change for him it's a new life for him so I'm very glad that we spent all this time in planning and uh we were able to execute it in the way we wanted so today he is a very happy happy bright boy and I have made a commitment from him that he will become an engineer or a doctor and actually do this type of work for others and I've had other patients here we have done horrendous operations and they actually have done exceptionally well giving somebody who has no hope hope and a future I think is the greatest thing that we can do with God's help and I am very grateful to God that I have the privilege of doing this the type of surgery for people [Music]

Dr.

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